Ultra Rare Disease Day 27th November 2014

Monday, 16 June 2014

Types of rare diseases | Rare diseases | Centre for Research into Rare Disease in Children | Great Ormond Street Hospital Childr

Types of rare diseases | Rare diseases | Centre for Research into Rare Disease in Children | Great Ormond Street Hospital Childr







In case you don't know this will explain what Rare Disease is and the need for a centre of excellence here in Northern Ireland
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:19 No comments:
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What is a rare disease | Rare diseases | Centre for Research into Rare Disease in Children | Great Ormond Street Hospital Childr

What is a rare disease | Rare diseases | Centre for Research into Rare Disease in Children | Great Ormond Street Hospital Childr



In case you don't know this will explain what Rare Disease is and the need for a centre of excellence here in Northern Ireland
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:10 No comments:
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Tuesday, 20 May 2014

$ 4.8 Million Funding for Proteo’s Advanced Orphan Drug Development / Treatment News / News / CheckOrphan

$ 4.8 Million Funding for Proteo’s Advanced Orphan Drug Development / Treatment News / News / CheckOrphan
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 06:14 No comments:
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Monday, 24 March 2014

Mesothelioma: emergency action is vital to tackle a public health disaster - Rare Diseases

Mesothelioma: emergency action is vital to tackle a public health disaster - Rare Diseases
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 18:13 No comments:
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Training a future generation of doctors to diagnose rare diseases - Rare Diseases

Training a future generation of doctors to diagnose rare diseases - Rare Diseases
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 18:07 No comments:
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Monday, 10 February 2014

21 ways to participate in International Rare Disease Day 2014 | RareConnect Support & Capacity Building

21 ways to participate in International Rare Disease Day 2014 | RareConnect Support & Capacity Building
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 14:24 No comments:
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Sunday, 9 February 2014

Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story

Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story I spent 12 months fighting Churg Strauss Syndrome. Churg Strauss is an autoimmune vasculitis. Autoim...
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 05:53 No comments:
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Blog Archive

  • ▼  2014 (15)
    • ▼  June (2)
      • Types of rare diseases | Rare diseases | Centre fo...
      • What is a rare disease | Rare diseases | Centre fo...
    • ►  May (1)
    • ►  March (2)
    • ►  February (3)
    • ►  January (7)
  • ►  2013 (4)
    • ►  December (1)
    • ►  November (1)
    • ►  October (2)

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