Ultra Rare Disease Day 27th November 2014

Monday, 10 February 2014

21 ways to participate in International Rare Disease Day 2014 | RareConnect Support & Capacity Building

21 ways to participate in International Rare Disease Day 2014 | RareConnect Support & Capacity Building

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 14:24 No comments:

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Sunday, 9 February 2014

Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story

Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story I spent 12 months fighting Churg Strauss Syndrome. Churg Strauss is an autoimmune vasculitis. Autoim...

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 05:53 No comments:

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Saturday, 8 February 2014

Audentes Therapeutics and Genethon Announce Agreement to Develop Treatment for Severe Genetic Disease X-Linked Myotubular Myopathy / Treatment News / News / CheckOrphan

Audentes Therapeutics and Genethon Announce Agreement to Develop Treatment for Severe Genetic Disease X-Linked Myotubular Myopathy / Treatment News / News / CheckOrphan

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 10:25 No comments:

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