Ultra Rare Disease Day 27th November 2014

Monday, 16 June 2014

Types of rare diseases | Rare diseases | Centre for Research into Rare Disease in Children | Great Ormond Street Hospital Childr

Types of rare diseases | Rare diseases | Centre for Research into Rare Disease in Children | Great Ormond Street Hospital Childr







In case you don't know this will explain what Rare Disease is and the need for a centre of excellence here in Northern Ireland
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:19 No comments:
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What is a rare disease | Rare diseases | Centre for Research into Rare Disease in Children | Great Ormond Street Hospital Childr

What is a rare disease | Rare diseases | Centre for Research into Rare Disease in Children | Great Ormond Street Hospital Childr



In case you don't know this will explain what Rare Disease is and the need for a centre of excellence here in Northern Ireland
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:10 No comments:
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Tuesday, 20 May 2014

$ 4.8 Million Funding for Proteo’s Advanced Orphan Drug Development / Treatment News / News / CheckOrphan

$ 4.8 Million Funding for Proteo’s Advanced Orphan Drug Development / Treatment News / News / CheckOrphan
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 06:14 No comments:
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Monday, 24 March 2014

Mesothelioma: emergency action is vital to tackle a public health disaster - Rare Diseases

Mesothelioma: emergency action is vital to tackle a public health disaster - Rare Diseases
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 18:13 No comments:
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Training a future generation of doctors to diagnose rare diseases - Rare Diseases

Training a future generation of doctors to diagnose rare diseases - Rare Diseases
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 18:07 No comments:
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Monday, 10 February 2014

21 ways to participate in International Rare Disease Day 2014 | RareConnect Support & Capacity Building

21 ways to participate in International Rare Disease Day 2014 | RareConnect Support & Capacity Building
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 14:24 No comments:
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Sunday, 9 February 2014

Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story

Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story: Churg Strauss Syndrome - My Story I spent 12 months fighting Churg Strauss Syndrome. Churg Strauss is an autoimmune vasculitis. Autoim...
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 05:53 No comments:
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Saturday, 8 February 2014

Audentes Therapeutics and Genethon Announce Agreement to Develop Treatment for Severe Genetic Disease X-Linked Myotubular Myopathy / Treatment News / News / CheckOrphan

Audentes Therapeutics and Genethon Announce Agreement to Develop Treatment for Severe Genetic Disease X-Linked Myotubular Myopathy / Treatment News / News / CheckOrphan
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 10:25 No comments:
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Thursday, 16 January 2014

Help support non-visible disabilities with Ability Profiler

Help support non-visible disabilities with Ability Profiler
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 08:44 No comments:
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Developing Products for Rare Diseases & Conditions

Developing Products for Rare Diseases & Conditions
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 05:44 No comments:
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WHAT IS AN ORPHAN PRODUCT ? |

WHAT IS AN ORPHAN PRODUCT ? |
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 05:36 No comments:
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Wednesday, 15 January 2014

Team Leaders, North, West,East,Belfast | CommunityNI

Team Leaders, North, West,East,Belfast | CommunityNI
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 13:37 No comments:
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Site Finder and Box Collector | CommunityNI

Site Finder and Box Collector | CommunityNI
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 12:51 No comments:
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The Ultra Rare Disease ,Disorders & Disabilities Foundation | CommunityNI

The Ultra Rare Disease ,Disorders & Disabilities Foundation | CommunityNI
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 12:32 No comments:
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Gower girl lives with rare bone disorder / People News / News / CheckOrphan

Gower girl lives with rare bone disorder / People News / News / CheckOrphan
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 04:17 No comments:
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Blog Archive

  • ▼  2014 (15)
    • ▼  June (2)
      • Types of rare diseases | Rare diseases | Centre fo...
      • What is a rare disease | Rare diseases | Centre fo...
    • ►  May (1)
      • $ 4.8 Million Funding for Proteo’s Advanced Orphan...
    • ►  March (2)
      • Mesothelioma: emergency action is vital to tackle ...
      • Training a future generation of doctors to diagnos...
    • ►  February (3)
      • 21 ways to participate in International Rare Disea...
      • Churg Strauss Syndrome - My Story: Churg Strauss S...
      • Audentes Therapeutics and Genethon Announce Agreem...
    • ►  January (7)
      • Help support non-visible disabilities with Ability...
      • Developing Products for Rare Diseases & Conditions
      • WHAT IS AN ORPHAN PRODUCT ? |
      • Team Leaders, North, West,East,Belfast | CommunityNI
      • Site Finder and Box Collector | CommunityNI
      • The Ultra Rare Disease ,Disorders & Disabilities F...
      • Gower girl lives with rare bone disorder / People ...
  • ►  2013 (4)
    • ►  December (1)
    • ►  November (1)
    • ►  October (2)

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